We heard from the transplant coordinator today and it was pretty good news. Cleos' GFR went up to 22 from 21 in December. You have to be at 20 or lower to be on the active transplant list, so this just buys him a little more time. He does have to have a stress test which they will schedule in the next couple weeks and he also has to see the urologist tomorrow for a prostate exam (how fun!) and these are both at the request of the insurance company. But other than those 2 things, everything else looked good. He will continue to be followed by his nephrologist and have blood drawn every 3 months to monitor the GFR. He goes back on March 9th for bloodwork and sees the dr. on the 16th so she will let us know if anything changes and be in constant contact with the transplant team in Atlanta.
We will continue to update as things change and to let y'all know when they will start testing potential donors. They aren't allowed to do that until he's on the active list otherwise the insurance won't pay for the testing and it's quite expensive so we can appreciate that.
We sure do have a wonderful family and network of friends who continue to pray for Cleos' health and well being. We do appreciate it even if we don't thank you individually. Love ya all...
3 years ago
4 comments:
Yay, i'm so excited to hear this great news! Thanks for calling me. It must the new grandbaby that's making dad move in the right direction. I'm sooo glad that I could help. Just kidding. I'm so glad that dad has just even that much more time. He's so amazing, and you're so amazing to always be his support! We mis syou both and love you more!
You guys are so strong. I love ya both. SO glad to hear that everything is going well. Look forward to seeing you guys this summer!
Sounds like things are on the ups. Glad to hear that things went well. We think about you guys often! I love ya both. Thanks for the update! p.s. I love the pictures of Coris little girls how precious they are! Take care. Kim
Hey mama, I think i'm missing you a little too much right now. I'm also pretty hormonal but I tear at the thought of seeing you guys this summer. I love you so much!
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